If I Develop Dementia, Here Is How I Want My Family to Remember Me

If I Develop Dementia, Here Is How I Want My Family to Remember Me
April 29, 2026
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From Omar
Consider the impact of losing your voice. Learn why preserving your personal story now is profoundly important. Capture your unique legacy today.

The time to tell your story is before you can no longer tell it yourself.

April 29, 2026

Hi, I’m Omar, the founder and CEO of Kinnect. This blog is part of the From Omar series, where I share reflections on family, relationships, and legacy. These aren’t clean-cut lessons or polished advice — they’re raw, honest thoughts I’m still figuring out for myself.

Today, I’m reflecting on something that’s been on my mind more than usual: what it means to leave something behind for the people you love. And for me, this thought takes a more specific shape when I think about dementia.

My grandfather battled dementia for 10 years before he passed away. It’s been 10 years since he died, but the experience of watching someone you love slowly lose pieces of themselves never leaves you. It stays with you.

What if that’s me one day? What if I’m part of the largest generation of older people in history, many of whom will experience dementia?

While I can’t control the future, I can control what I leave behind.

The weight of what we leave behind

I want people to feel like they’re doing more than saving memories in Kinnect. abrazos, omar

Kinnect offers two tools that matter here. What Matters Most is a free end-of-life reflection tool built with a physician, designed to help families think through values and wishes before they are needed. The Echo daily prompt feature gives families a simple, low-friction way to stay emotionally close through difficult periods. Start free at kinnect.club — no credit card required.

Keep reading

OA

omar alvarez

Founder & CEO, Kinnect | Co-founder, Urge Candies

Omar Alvarez grew up in Chicago the son of Puerto Rican and Guatemalan immigrants. He went on to work at the headquarters of Nike, Levi's, and Hilton Hotels before co-founding Urge Candies and founding Kinnect. He builds things that bring communities and families together—whether through shared physical experiences (candy) or private digital spaces (Kinnect). He writes about memory, connection, and what it actually takes to keep the people you love close.

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